3rd July 2022. Less than 10 days from her dying. Here she is flushing the tube after running her food down it. Alice liked to help herself, growing up from an early age she liked to get involved in the various procedures around her treatments. Giving Alice control was important.

In her many many injections and taking of blood samples rather than look away like I would do she instead looked straight at the needle. She was mentally strong, she was amazing.

Alice loved her food. She ordered things out of the ordinary and was keen on taste. I’m glad I found this image because my memory was that it seemed cruel at the time that she lost the ability to swallow and could not enjoy food but had to be fed through a tube.
Less than one month before her death here she is enjoying an outdoor meal at a garden center. I do remember she took ages to eat it and may have got a little upset at her swallowing but here she is in the sunshine. The feeding tube must have been fitted within the next week or so.

Update: Jennie reminded me that Alice couldn’t eat the meal after all and Alice did get upset. Alice had eaten well in the previous days but then it became difficult and Alice needed a feeding tube.

Sorry to have misled, perhaps my optimism, the sun and Alice with a plateful of food in front of her skewed my memory, we had successfully gone through all sorts of trials previously by being optimistic and just bouncing over things but there came a point where that no longer worked and we were lost.

June 2022. I think we knew by then that Alice last chance treatment didnt work and we entered a kind of uncertainty where we got through each day the best we could. I think I persuaded myself that a miracle might happen and Alice would get over it. I didnt think very deeply about what might be happening.

A cancer charity was in the process of enabling Alice to go to visit Bristol to be shown around Ardman animations but we ran out of time to do that. Ardman sent Alice some items (including the Shaun the sheep slippers) It was very kind of them and help lift spirits. Not that we were down in the dumps. Alice led the way by showing how she could cope in an impossible situation and still smile. Still play games and still enjoy learning and making.

Shortly after this she became worried that she might be forgotten and I said I would make a website about her and we would fill it up so we could remember her. Each of these entries is difficult to make but I dont want to stop. Alice, you are still an inspiration. We miss you every day.

Alice is not around to say new things, to do new things. We carry her in our memories but our memories are poor.

Taking a long walk and finding a bench in Beston Regis.

I remember sitting on this bench with Alice on one of our long walks, when we spent 3 or 4 hours away from home.

Alice only got her scooter a few years ago, her strength just started to leave her.

Many happy memories of those walks, they seem so long ago and despite it being Spring now I feel so sad.

 

 

A lovely day visiting An ex neighbour today, nice to see Rosemary in her home, thanks to Karen and her husband for the lift there and Rosemarys friends for the lift back.
on Rosemarys mantle piece a little bit of Alice’s work

In the home of Sue and Paul Lucas, a heart given by Alice:

In the home of Paul and Elaine, a portrait of a their dog Henry made by Alice.

 

Alice did enjoy her arts and crafts. In 2018 when Alice was well and yet to have the cancer return she spent lots of time with Sarah.

I have been digitizing my old films and came across a sheet of transparencies from 2001. Each strip is 6 frames long so these images are next to each other in the slide sheet. It looks like we had a trip to London that year, will need to look up the date.

When I put the film in my camera I had no idea of what was about to happen. Between these frames we went through a life altering event. Alice was so brave. From one minute to the next things can change.

 

My sister Susan Lucas sent off a picture of Alice to be 3d printed inside a cube of perspex. Lit from underneath it shows a 3 dimensional representation of Alice. It was a very thoughtful gift, still pictures are fine but just 2d, when we could see Alice from different viewpoints it reminded us of her physical presence. It made us cry for the loss of Alice but will help us remember her. Alice would have loved this and the technology behind it.

 

Alice’s Aunts and uncles are remembering Alice too. I received this framed picture from my sister Jackie Haw, she had painstakingly pressed a set of diamond dots to form an image of Alice from one of my favourite photos of her. I know that Alice loved diamond dots and she enjoyed the process of pressing each individual piece in place. She spent hours doing it whilst listening to a podcast or youtube video. She would have loved this.

We placed it in the kitchen, as you walk past it the light shimmers across the picture and makes Alice sparkle. Thank you Jackie.

 

In 2018 we still lived in the big house on Holt Road. We were surrounded by loverly neighbours including a new neighbour Hugh Jamieson who was modernising a bungalow across the road from us.

He had found Mocha living on a Greek beach and at great cost and time had brought Mocha back to the UK. Mocha was a really lovely, very laid back dog and Alice loved him straight away. Hugh let us take his dog on walks (as long as we returned him) and one time I took a simple video capture device to make a short film.

Mocha didnt need the lead as such, he knew his way around and was never a problem. At the end of the video the kitchen is nearly redone – I just needed to put the flooring down, later that year we put the house on the market.

2018 was the last full year of a 9 year period where Alice’s cancer did not return. She had stamina and balance issues but she could do a long walk and enjoy it. Time spent with Alice like this was always precious but even more so now. Enjoying simple things, we were so fortunate.

words fail me.

Sarah loved Alice and Alice loved Sarah, cool to have an artistic Aunt and Alice had a few. Here is what Sarah says about the piece:

Alice seems to be smiling and more alive than in the actual photo. But I suppose I hold Alice more brightly in my mind than any photo ever can – Sarah Hedley

 

Alice loved a new visitor so when Jos from my old workplace in London came to stay the weekend she was pretty excited. He brought his little sailboat with him and we all went down to see him launch.
I remember the boat from the tiny front garden of his house in Brixton – pretty unusal sight for the area! He loved the sea.

Jos died young, about a month later than Alice in August 2022. It made me even sadder. Jos was a wonderful person and he became a friend as I taught him some Unix and VMS scripting in his job at the imaging department at Getty Images. Like Alice he was sensitive and beautyful.

I came across these transparencies from I think the year 2000 recently. This was before Alice became ill for the first time. Looking back now I find myself trying to find some kind of meaning in the pictures.

Alice Johnson and Jos Brosnan said goodbye to the world at pretty much the same time. Two worthwhile and good people lost to us. For us left behind we can only do our best to live without their gift. His partner, friends and collegues had Jos’s name added with others to the side of a lifeboat, a fitting tribute, helping to save peoples lives at sea is to be supported as much as researching cancer.

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https://www.braintumourresearch.org/donation