It is very hard to put this up but I feel its important to remember.
Alice had just had a brilliant day where she had a friend over for a sleepover the previous night and had spent the morning playing retro games with another friend.
I could tell that Alice was getting a little tired by late afternoon and she wanted to go to bed to rest. I nipped out to Tesco to get a few things including some beer but at the checkout I received a call to say that Alice was having difficulty with her breathing.
By the time I got home she had overcome the difficulty and was smiling, this prompted me to record this video on my phone.
Not long after the problem reoccured where she would take a gulp of air but then not seem to breath for a short time before taking another gulp.
Her friends and family were around her bed and she knew that we were ther for her. She remained calm, she absorbed our love.
The local team looking after Alice came and changed her and got her comfortable, she had lost consciousness by then but was still breathing erratically.
It was about midnight that I suggested people leave and go to bed whilst Jennie and I stayed with her. I held her hand under the cover as she slept. Listening to her straining to breath. At about 2:50 in the morning of the 12th there was no more breath after the pause and I knew that she had left us.
We called in the support team that prepared her body and set the bed for a visit from the doctor in the morning.
I wish Alice did not die but I cannot see how it was possible for her to go in any better way. She knew she was dying. She was calm, She was accepting. She wanted us to know that she loved us even when her voice was hardly audible. We all said we loved her.